Some background: Iâm a woman in my 30s whoâs been struggling to find the right diagnosis for years. Since 2022, Iâve had multiple psych hospital stays, and with each stay came a different diagnosis and different sets of medications: Bipolar II, CPTSD, MDD with psychotic features, âhigh functioning BPD,â and most recently, Schizoaffective Disorder (depressive type). Before all of that happened, I had been seeing a therapist for CPTSD and AuDHD traits for 2 years, but after they left the practice, I struggled to find someone I trusted again.
Most of my breakdowns happened during my last relationship. Looking back, I was in survival mode with them, leaving who *I* am behind. I got to the point where I started doubting my own reality from the abuse. This eventually added up and landed me in my first episode of psychosis. That combined with my attempts is what got me my schizoaffective diagnosis. After finally leaving that relationship 1.5 years ago, Iâve slowly rebuilt my life: new town, new job, new friends. Many of my old symptoms (major ones) havenât returned, which makes me believe I may have been misdiagnosed due to reliving past childhood trauma and stress responses from the abuse.
Through all of this, Iâve felt like nothing ever truly fit. I journal, I reflect, I replay the recordings and Iâve even watched old vlogs âthe puzzle pieces still donât come together. Itâs left me feeling like Iâll never really know whatâs going on, and Iâve started to fear that my diagnoses will just keep stacking up without ever leading to effective treatment.
Recently, I opened up to a friend about this. She mentioned that her neighbor went through something similar not exactly like me but she thought it would give me a starting pointâmultiple diagnoses that never felt rightâuntil a new doctor finally identified it as OCD. That one diagnosis changed everything for her. It made me realize I really donât know much about OCD beyond the stereotypes. I didnât know OCD could involve intrusive thoughts, rumination, or mental compulsions. My friend encouraged me to look into it, especially as I start searching for a new therapist. Facebook and Google lead me hereâŚ
So now Iâm wondering: could OCD be a better explanation for what Iâve been experiencing all these years?
Questions for the community:
1. What steps did you take to find out if OCD was what you were dealing with?
2. If you had a long history of misdiagnoses, how did you finally find a clinician who got it right?
3. How did you advocate for yourself when people dismissed your concerns?
4. Is there anything you wish you had done earlier in your OCD journey?
Thank you so much if you made it this far. Iâm really grateful for this space and just want to start finding answers and the right kind of help.