- Date posted
- 1y
Medical Appointments
Since i started explaining to my medical providers about my OCD, I have had 2 thank me for bringing it up because they feel like it helps them treat me better.
Since i started explaining to my medical providers about my OCD, I have had 2 thank me for bringing it up because they feel like it helps them treat me better.
Do you have health ocd as well? I’ve been dealing with it for about a year and the first doctor I went to didn’t really help. I started therapy and was able to make progress but recently have been going through a bit of a relapse. I switched providers and have an appointment this Thursday but I’m a little nervous about how to bring it up. Do you have any advice/tips?
@hopefulsunny yes, my health ocd is strong. I have just started out by saying that I want them to know about my ocd and that sometimes conversations that they just share can be distressing to me and I would like it if they ask first. Like if they prescribe a drug, don’t tell me the side effects unless I ask (I can read the directions later) or it could start a loop and the rest of the appt is lost. Of course sometimes someone says something they don’t remotely know will be hard for me, but I have skills and I can usually get past it in the moment. One person even asked questions that showed they really were thinking about my situation and planning a way to help. So nice. Best of luck. I would like to know how it goes.
@gixmo Thank you! Are you currently in therapy or on medication? I’ve been in therapy since November of last year and was making progress but am now struggling and have to go back to basics. I’m thinking of starting medication because of how strong the feelings are this time around.
@hopefulsunny I am in therapy now and practicing my ERPs. It has been a stressful year and we thought about meds, but I am waiting to see if I level out as the stress goes down before trying that. With health concern OCD I am not always thrilled about medication. There’s the irony. But I have had good results with sitting in uncertainty lately. I would still consider meds if I spike or struggle more. I talked with some good consultants. Good luck !
@gixmo Sorry to bother you again. I just saw my new doctor and he was very nice. He was super understanding and while I explained what I was going through there was still a lot I didn’t share. There’s so many sensations that I didn’t bring up because the majority of them only started happening after I got this theme. And they tend to subside when I hyperfocus on another part of my body. I also spoke pretty generally about my health anxiety not my specific health fear. I don’t know what it is but every time I go to the doctor or when I have to say my thoughts and concerns out loud I suddenly feel crazy and choose not to say anything. If you have any advice, I’d really appreciate it!
@hopefulsunny Glad you brought it up! It always feels hard for me since i decided to bring it up to medical folks because some (for whatever reason) don’t get how much it comes into play. And after years of avoiding even making appts then never bringing it up, I still feel closer to being in charge of what I need for a successful appt. If they can’t help me when I tell them my needs, I look for another provider. You deserve to get theBEST most helpful treatment. Keep advocating. And practice - I write down what I am going to say and read it to myself before I go.
Mine don't seem to care. They don't understand it at all.
@Anonymous I have had those. One sent me into a huge down slide and I switched immediately. I reminded one other person too because they are in such a rush and it slowed everything down and I got better answers. It is hard to add in to the rest of it.
I finally found the courage to seek a psychiatrist last week, when I got there I was nervous for obvious reasons and felt a bit guilty. I met the doctor and don’t get me wrong he was very nice and knowledgeable in the bigger scope of mental health. Asked me questions of depression, anxiety, if I see things others don’t etc.. However, while we went through the assessment I did not receive a formal “diagnosis” and seemed as though he came to the determination what I have is general anxiety disorder. I don’t disagree, I know I have anxiety! However, when it came to the point where we were wrapping it up I had a “BUT WAIT” moment. I explained I was a part of an OCD community where I had previously been doing therapy to manage OCD. He asked “well why OCD?” I replied, “I have constant thoughts very repetitive thoughts that follow a theme and they are extremely persistent.” It was then I knew I couldn’t let down the walls and go into depth, as I knew he wouldn’t understand. To validate what I already knew, I said “I have constant fears and worries about my children, myself, and religion. I think about these things all day long. In order to free myself from the feeling I have to say a specific phrase or word in my head.” He said “well yea that’s normal to have worries and fears about your family, your religion” and so forth. The feeling of disappointment is an under statement, this is more than just “anxiety” this is something that I struggle with daily and to have a professional discredit my daily fight was off putting. Not his fault, it demonstrates the lack of knowledge for OCD and treatment many of us have to face. Sorry for the rant, sometimes we just have to advocate for ourselves.. 🌸
I was super recently diagnosed with OCD and nervous to share my diagnosis with my family. I’m a somewhat messy person and don’t have germophobic tendencies, so since I don’t have the stereotypical OCD presentation I was terrified that nobody would believe me. I ended up talking to my mom and making a silly TikTok post about it, which my grandma saw. Not only did they believe and support me–I learned that my grandma has it too! Funny to look back on, but really cool to see that the worst outcome doesn’t always happen. (:
I’m kind of frustrated because for YEARS I’ve been trying to express my concerns. For about 6-7 years I’ve been concerned about having OCD. I’m not diagnosed and I want to talk to a professional to confirm whether or not I have it. I have been struggling with several symptoms over many years of my life and it has been absolutely distressing. I’ve expressed my concerns to two doctors. One of them pretended like they didn’t hear me and the other did give me scenarios that I experience. When I said yes to the ones that applied to me, she said “well it’s very normal for people to wash their hands a lot and check door locks” well yeah but what I experience is so much more than that and it’s been absolutely horrendous. I have super bad compulsions and intrusive thoughts, at some point I broke a TV because I felt like I had to throw these little coasters at it for 5 times. And then after those 5 times, the way I threw it didn’t feel right, so I had to do it again and again until it felt right and then it broke :/ The doctor later told me that they can recommend me to professionals but my mom didn’t want me to because of fear that I can get medicated. But I just want to talk to a professional to be able to express my concerns about it. I also feel bad about talking about what I experience because I don’t want people to think that I’m trying to self diagnose myself. I just want to be able to recognize my struggles and try to overcome what I go through. All I want is help. At some point I went to therapy and I had three sessions and then my mom pulled me out. But in those sessions I haven’t talked about my struggles with OCD yet, I was talking about other issues and my therapist was still trying to get to know me. :( Sometimes when I’ve talked to my parents they don’t really try to listen. Sometimes they tell me “well everyone has a little bit of OCD”. Okay, well I’m not talking about everyone, I’m talking about ME. And back when I struggled so much with violent intrusive thoughts, it was also a time where I felt like I HAD to tell my parents about every thought that I had. And my parents were concerned and thought that I was just in general violent. But I’m not violent, I don’t believe these things. And they STILL don’t want to hear me out on my concerns after all of that. I just want to feel validated with what I go through. I am convinced that I struggle with OCD, but I want to be SURE. I don’t want to feel like I’m self diagnosing. I want to KNOW what I’ve been experiencing all these years. I really do like this app because I feel like I finally relate to other people and that I can REALLY talk about my struggles while being understood. Whether or not if I do have it, I feel really understood and I really understand and relate with others. But anyways I hope I can figure this whole thing out one day😓🙏
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